We finally made to 6 monts old. They are sleeping through the night. Those days making posts about sleep deprivation are gone. Alot has happened over the last month. I previously posted about Ms London and that big lop-sided head. Plagiocephally is what her condition is called. I had to take her to a neurosurgeon. Her pediatrician wanted me to take her to University of Baltimore but Johns Hopkins had an earlier appointment so I went there....WHY WHY WHY?? Her appointment was with Dr. Ben Carson. First off, her appointment was at 1pm and he didnt see her until 3pm. Now let me explain what I see when I look at her, One of her ears is more forward. One is also up higher that the other. If you look at her head from the top down, it looks like something smashed her head between two boards. The left side of her face is flatter than the other side and one eye is up higher than the other. It was like that when she was born but it has gotten progressively worse. I have been turning her to the other side since birth but she can move her head however she wants to, so that doesnt work.
Anyway Ben Carson finally graces us with his appearance, keep in mind that I didnt schedule my appointment with him, thats who they assigned me to. He comes in with a freaking entourage of people. He is the most arrogant son of a bitch that I have ever met in my life. I guess he was dissappointed because I wasnt ''star struck''. He goes on to tell me she is plagiocephally with a side dose of torticollis. I knew that already. I always do my research prior to making decisions about anything. This asshole said that her head would fix itself and that he has seen worse cases. He says''She is plagiocephally, do you want me to write it down''. This guy didnt have a clue how highly intelligent I am. He didnt take any measurements of her head, no scans, nothing. All he did was come in with his entourage and look at her. He then proceeded to ask me if she was a boy or girl? One of his ''followers'' said, ''Shes a girl. You dont see all that pink and her earrings and barrettes?'' This dumb ass asshole says ''Well you never can tell these days.'' I wanted to JACK SLAP THE SHIT OUT OF HIM. He recommended physical therapy for her neck. She cant turn her head to the left because of the torticollis. He says he have the make her a pillow to sleep on that wont allow her to sleep on the flat side of her head. The helmet is almost $4,000. He claimed the insurance company wouldnt pay for a cranial helmet for her because it wasnt severe enough...BULLSHIT. Lond was almost 6 months at the time, she can roll over and you recommend a pillow...hello S.I.D.S. I did my research and the pillow is not even recommended for a baby that old. This guy is a clown. I dont know who he thought he was dealing with but I advocate for MY children. Just because you are a doctor doesnt mean shit to me. London Earlene Boone is MY baby. I know that her head was severe enough for the helmet. So I took her to another neurosurgeon at University of Baltimore. His name was Derek Bruce as soon as he saw her he knew why I was there. He said he could see it and that it was severe because it is affecting her face. He wrote me a prescription for the helmet. He also explained that insurance may not cover it because it is considered cosmetic, but to go to a helmet clinic anyway and let them fight with the insurance company. He said he wasnt sure where a helmet clinic was. He was told by another Doc that it was at Hopkins. So back to Hopkins we went. This time she saw a Dr Edward Akn. He looks at her chart and says I agree with Dr Carson. He took no measurements scans or nothing. I lost it. I cursed his ass out, cause I was so sick of Hopkins and their shit. I told him that I dont give a fuck about other cases, just my child, I told them that Hopkins was a cult and all the Drs live to kiss Ben Carsons ass. I told them fuck them and I got the hell outta there. My husband told me I was crazy but I didnt care. I was so pissed.
They mustve thought I was crazy because on the phone the physical therapist said she wouldnt get the pillow the same day. I went down there and they told me they would go ahead and make it and give it to me so I wouldnt have to come back..lol.
Fast forward a few weeks, London doesnt even sleep on the pillow. She scoots off of it, attacks it and some other stuff. One of my fellow twin mamas on Babycenter told me about this place called Hangar Orthotics. The evaluation was free. They even did scans of her head. Her skull is really deformed under those fat cheeks. They said the insurance would only pay for it if it was severe...Guess what?? They are paying for it in full and she gets it on Friday. I want to call Ben Carson, Edward Akn and the directo of the hospital and call them a pack of arrogant, shit faced sons of bitches. But that wouldnt be nice. They will be hearing from me. My theory remains the same, I do not like black or asian Drs, they are arrogant and think they know every damn thing. Im sorry but I said it before and I'll say it again, I would rather see a white Dr or an Indian one because they are more undertanding. This is from my personal experience. Im done ranting now, moving on along.
London is a whopping 16 lbs. Thats my big mama with tose chunky legs. They claim Sydney is 15 lbs, but I dont believe it. She is so light I can carry her around all day. Thats my munchkin. They are so Freakin cute. Sydney is rolling copletely over. She rolls around the floor like a little sausage. Lazy London goes side to side thats about it. Im a little concerned becaus ethey arent sitting up yet but I have to remember that they were preemies and I have to subtract the time, their real age is 6 months but there adjusted age is 4 1/2 so I guess by the time they are 7 1/2 months they will be sitting up. There hair is getting so long....at the top and sides. They are so baldheaded in the back. It will grow in eventually..I hope.
